How You Can Budget Your Energy while Traveling

As you’ve read in my previous posts, I have Multiple Sclerosis (MS). The most common symptom that 80% of people who suffer from Multiple Sclerosis is fatigue. That is why it is so important to learn about budgeting your energy.

Fatigue is very different from being tired. The best example to demonstrate this to people who are tired versus people suffering from fatigue is if you (person who is tired) get a good night sleep, you wake up and your battery is fully charged. Whereas if I (a person who is suffering from fatigue) get a good night sleep, I wake up and my battery is at 60%. I do not have the ability to wake up with my battery fully charged.

So, it is very important for me and people like me to budget energy while traveling. We always hear about people budget traveling, meaning they are trying to save money. What about budget traveling talking about budgeting your energy ?

Traveling can be an enriching and rejuvenating experience, offering new perspectives and memories to cherish. For those living with Multiple Sclerosis (MS), the idea of traveling might seem daunting, but with the right preparation and mindset, it can be both feasible and enjoyable.

Understanding Multiple Sclerosis and Travel

Multiple Sclerosis is a chronic condition that affects the central nervous system, leading to symptoms such as fatigue, mobility issues, and cognitive changes. While these symptoms can present challenges, they shouldn’t prevent you from exploring new places and enjoying travel experiences. The key lies in careful planning and adaptability. Here’s a comprehensive guide to help you navigate the world while managing MS.

1. Budgeting Your Energy Tip 1 : Use a Cane

The first thing I’m going to suggest for budgeting your energy is to walk with a cane or walking stick or using some other type of walking aid. I first started to use a cane when I went to Greece in April 2024, I was diagnosed in May 2021. I know MS is different for everyone, and for me, when I get really tired, I start walking like I’m very drunk. Picture a person not able to walk in a straight line. Walking with a cane helps to stabilize me. It also signals to other people that I am not drunk. That clearly something else is going on.

2. Budgeting Your Energy Tip 2 : Sitting Often

Even if I feel like I do not need to sit, I sit at every opportunity. I find that sitting often helps to budget my energy. I love to travel and to discover new places. I hate feeling like I am missing out. So, I try to do as much as I can without killing myself. This is why it is so important to listen to your body and to stop before you need to stop.

3. Budgeting Your Energy Tip 3 : Spray Water Bottle

Like many sufferers of Multiple Sclerosis, I do not do well with heat. Even if I’m not sweating, I discovered I can still be hot. This was new for me. So, I bring a spray bottle of fresh water with me. It can be very refreshing and it really makes me feel better. If I am at home, my loving husband gets a wash cloth wet and puts it on my neck or forehead. Do what is best for you.

4. Tip 4 : Travel Insurance

Travel insurance is important for everyone. My husband always sites Murphy’s Law, if you have insurance, you won’t need it, but if you don’t have it, you’ll need it. Better safe than sorry. Invest in comprehensive travel insurance that covers pre-existing conditions. Ensure it includes medical evacuation in case of emergencies.

5. Budgeting Your Energy Tip 5 : Comfort Items

As my husband kindly reminds me, I deserve to be comfortable and travel can be very uncomfortable (even if you don’t have a disease). Pack items that can help you manage fatigue and discomfort, such as a neck pillow for the plane, compression socks, and comfortable clothing. Be selfish. Think of yourself and what you want or need.

6. Tip 6 : Handicap Accessible

Handicap accessible usually is always referring to wheelchair accessible. I recently learned that if you turn this setting on in Google maps, you can avoid stairs. It’s a win-win even if you are not using a wheelchair. This is good for when you’re in cities like Lisbon, Portugal that has a lot of hills and a lot of stairs. You’ll still have to walk uphill if you use this option, but you will avoid the stairs. I don’t know about you, but stairs are difficult for me to manage.

7. Tip 7 : Free Access

I learned in Athens that many sites and museums offer free access to those who are considered handicapped. No, everyone cannot apply to be handicapped, you need medical papers from your doctor. If you have not already, do this ! It takes a long time. I applied in November 2023, it is now June 2024 and I have heard nothing.

I brought the paperwork with me and this was good enough proof before I get my official card. This is great for those suffering from MS, because if you’re like me, museums are a cool (literally) place to sit. I try to sit and admire artwork from a chair to save my energy. Some museums offer lightweight chairs to take with you around the museum so you can sit anywhere. This really helps. So even if your embarrassed, do it. Take a chair with you.

8. Tip 8 : Priority Boarding

The last time I flew, I asked the flight attendant working the desk in the airport if I could have priority boarding. I am so clumsy so it is hard for me to board a plane, especially when it is already full. That is why I asked, and was given, priority boarding. I had my papers showing I am handicapped, but the flight attendant did not need to see these papers. So, if this could help you, it doesn’t hurt to ask !

Embracing the Journey

1. Stay Positive: Focus on what you can do rather than limitations. Embrace the adventure and enjoy the moments of discovery and relaxation.
2. Connect with Others: Join online forums or support groups for travelers with MS. Sharing experiences and tips can provide valuable insights and encouragement.
3. Listen to Your Body: Pay attention to your body’s signals and rest when needed. Don’t hesitate to modify your plans if necessary to ensure your well-being.
4. Create Memories: Capture your travel experiences through photos, journals, or blogs. These memories can be a source of joy and inspiration.

Final Thoughts

Traveling with Multiple Sclerosis requires extra planning and consideration, but it is entirely possible and can be incredibly rewarding. By prioritizing your health, staying flexible, and embracing the journey with a positive outlook, you can explore new horizons and create lasting memories. So, pack your bags, prepare well, and embark on your adventure with confidence. Happy travels!

For more reading, check out my other blog on traveling with Multiple Sclerosis :

Travel Life with Multiple Sclerosis – Travel Blog (sarahallisonwonderland.com)

How to cope when Traveling with MS – Travel Blog (sarahallisonwonderland.com)

And my series of posts about traveling in Greece with Multiple Sclerosis :

Traveling Greece with Multiple Sclerosis : Égina, Greece – Travel Blog (sarahallisonwonderland.com)

Traveling Delphi, Greece with Multiple Sclerosis – Travel Blog (sarahallisonwonderland.com)

Traveling Greece with Multiple Sclerosis : Nafplio – Travel Blog (sarahallisonwonderland.com)

Traveling to Athens, Greece with Multiple Sclerosis – Travel Blog (sarahallisonwonderland.com)